Jiepie Awards

JiePie AWARD

JiePie Award” ™

MSA-AMS Belgium, a partner organization of the MSA Coalition (USA), works intensively in Europe to support and guide MSA patients, to organize MSA symposiums and to fund scientific research.  

 The Belgian, Multiple System Atrophy Support Group has a 4-pillar Mission: 
– SUPPORT – EDUCATION – ADVOCACY – RESEARCH FUNDING –
The MSA patients support group is run entirely by volunteers and has no paid employees. The non-profit organization has grown steadily since 2008 and now has a primary mission/goal of helping to encourage and fund research that will lead to a cure for multiple system atrophy.

The MSA-AMS has a dedicated MSA Research Fund, awarded with the yearly JiePie research Award. 

JiePie Award” for MSA Research & JiePie Award”for MSA Awareness Ambassador” ™

A world-class MSA scientific advisory board determines the research grants.

Donations and Actions: 

Donations for Research MSA:IBAN BE17 7380 4238 8921 BIC KREDBEBB  add as ref ‘RESEARCH MSA VZW’ are entirely used for the yearly JiePie Award for Research grants. 

Donations to the ‘“Friends of MSA Fund” IBAN BE10 0000 0000 0404 BIC BPOTBEB1 from the King Baudouin Foundation, with reference 016/1820/00041 this announcement allows the Foundation to identify the “MSA Fund” as the beneficiary of the donation.   Donations are entirely used for the project: “National MSA register” – located @ the University of Antwerp and supported by EMSA-SG. More info on mail request.

Multiple System Atrophy (MSA) fund managed by UZA foundation (UZAF), Public Utility Foundation (SON) 2019

Donations to ’Fund Multiple System Atrophy (MSA): IBAN BE69 0017 9875 6478 BIC GEBABEBB of the Foundation with reference ‘GIFT FONDS MSA’, are entirely used for research projects supported by UZAntwerpen and by EMSA-SG.

March, declared as Multiple System Atrophy Awareness Month by the grassroots network on Miracles for MSA for the first time in 2010. Also in 2010, advocates in  Belgium declared October 3rd as World Multiple System Atrophy Day.

Both Multiple System Atrophy Awareness Month and World MSA Day have been embraced by a number of MSA advocacy organizations around the globe who are now developing closer ties thanks to these two grass roots initiatives.

JiePie Award(s) for MSA jr’s” ™

This Junior award will be awarded to young people (17-21 year olds) who make MSA more negotiable with their thesis

2011: Kelly VAN LANDEGHEM, (BE)
Perceptuele en akoestische analyse van prosodie bij patienten met de ziekte van Parkinson, MSA en PSP
Perceptual and acoustic analysis of prosody in patients with Parkinson’s disease, MSA and PSP
2014: Sanne BRAILLET (BE)
“MSA, het verkeerde lot uit de loterij” – Wat is de invloed van MSA op de patiênt en de zorgomgeving.
“MSA, the wrong lottery ticket” – What is the influence of MSA on the patient and the care environment.

JiePie Award for MSA AWARENESS AMBASSADOR” ™

The Ambassador awards will be given to a person, institution, company or organization that has made an exceptional contribution to promoting MSA. By making special fundraising promotions, and / or by taking part in sports events, which make MSA visible and negotiable. In this way we want to make the general public and professional healthcare workers more aware of the problems of MSA

This award will be presented to a person, institution, company or organization who has made an exceptional way to bring meritorious MSA attention. By special fundraising activities, and participated in sports events, MSA to discussion. We want to increase awareness among the general public and health professionals on the problem of MSA

Previous winners ‘JiePie MSA Awareness Ambassador AWARD ’s
2011: Dr. Kristin CLERINX, (BE)
2012: Wayne BRENNAN, Ireland
2012: Pam BOWER, Canada
2012: Prof. Dr. Patrick CRAS, (BE)
2014: Flor VAN NOPPEN, BE)
2015: GBS de Klinker, (BE) &
2015: Sint-Jozefinstituut Borsbeek (SJB) (BE)
2015: Bob and Susan SUMMERS, March MSA Awareness Month (USA)
2015: Joost van der Heijden, Life Cycle Tour (NL)
2016: Rob Timmermans (BE)
2016: Lea Koolmees (NL)
2018: OM PARTNERS Charity (BE)
2018: Gunter DE COCK (BE)
2018: PONTES Charity (BE)
2019: Family Ilse, Kobe en Lode LAUWERS – SELDERS (BE)
2019: Family Hade & Fred VERHAEGHE – DE VOLDER (BE)

JiePie Award for MSA RESEARCH” ™

Already received a ‘JiePie Award for MSA Research’,

2011: Lien DE VIL & Isabel POPPE, (BE): Manual booklet Need for care in the Progressive Supranuclear Paralysis (PSP) Patient’, Master’s degree in medicine.

2014: Prof. Dr. Gregor K. WENNING, MD PhD, Austria: He is an expert on Multiple System Atrophy and author of numerous research articles and a medical textbook on the subject. In appreciation for his outstanding contribution, and his continuous dedication to the MSA Community, he received the JiePie Research Award for his book: Multiple System Atrophy by Springer –Verlag Wien 2014.

2015: Prof Dr. Veerle BAEKELANDT PhD, Neurobiologist KU Leuven (BE): For discovering that Alpha-Synuclein behaves like a prion and that the shape of the aggregates- ‘fibrils or ribbons’ determines whether a patient develops Parkinson’s disease or MSA, respectively – A discovery that might lead to a disease modifying treatment or a cure.
Prof. Dr. Veerle BAEKELANDT, PhD Neurobiology and Gene Therapy, KU Leuven: 2016 & 2019, Sophia Fund

2015: Prof Dr. Henry HOULDENMD, PhD, London (UK): For publishing the first genome wide association study on MSA showing new candidate genes that could trigger MSA and if blocked, might lead to a disease modifying treatment or a cure.

2015: Prof Dr. Niall QUINN, MA, MD, FRCP (UK), FAAN, FANA: For his lifetime achievement. “Named as one of the most distinguished MSA world experts’. Putting MSA on the map with the “Nature of the Beast” paper (1989) – for organizing the first MSA Congress (London 1997). For his research and studies over the years.

2018: Prof Dr. Nadia STEFANOV***, MD, PhD Neuroscience & Associate Professor, Department of Neurology, Innsbruck Medical University, Austria.

2018: Dr. Prof. Patrick CRASProf. Dr. Patrick CRAS, MD, PhD, UZA:
For his research – member of EMSA-SG. MSA-AMS Belgium, mentor since 2010. JiePie Ambassador Award 2012 – JiePie Award for Research 2018 Born Bunge Lab.UA “Funds Friends of MSA” KBS-FRB.

2019: Prof. Dr. Ronald MELKIMD, PhD, and Director of Research at CNRS Paris, France
A brilliant protein biochemist with a serious impact on synuclein therapies. He uses nice pasta images to illustrate MSA versus PD synuclein pathogens: spaghetti (PD) versus linguini (MSA) Intriguingly, the team generated alpha-synuclein assemblies that differ structurally and functionally, laying down molecular basis for different synucleinopathies, specifically Parkinson’s disease and multiple system atrophy.

2019: Dr. David CROSIERS, MD, PhD, UZA, Implementation of a Belgian patient registry for multiple system atrophy (MSA) patients. A registry with an extensive longitudinal data collection involving multiple movement disorder centers will be a major step forward in establishing a network for collaborative research projects. Collection of biological samples, including DNA, plasma, serum, cerebrospinal fluid will allow the registry to collaborate in a European context (EMSA-SG – European MSA Study group)

2020: to be decided

JiePie Award 2020” ™
Nominaties – Nominations

JiePie Award 2020 for MSA Awareness Ambassador:
Fam Marijke
Fam Ilse LAUWERS
Fam Hade De Volder
MSA Coalition USA

JiePie Award 2020 for MSA Research 2020:
Dr Florian Krismer, MD, PhD,  –  (JiePie AWARD 2020)
Department of Neurology, Medical University Innsbruck, Innsbruck, Austria
Dr med. Johannes Levin –  (JiePie AWARD 2020) supervises the ambulatory service for neurodegenerative diseases and is Consultant Neurologist at the Dept. of Neurology of the Ludwig-Maximilians-Universität München, Germany
Dr WOUTER Peelaerts  Ph. D. earned his Ph.D. in biomedical sciences from KU Leuven, where he studied in the lab of respected neuroscientist and Parkinson’s expert Dr. Veerle Baekelandt.
Prof Gregor K Wenning MD PhD MSC – Chair EMSA & MODIMSA –  (JiePie AWARD 2020 for his lifetime achievement Chair Division of Clinical Neurobiology, Department of Neurology, Medical University of Innsbruck, MZA, Austria

Posts

Title: Famous JiePie Award for MSA Research 2018 for Nadia Stefanova
Date: 21st November 2018 – originally written in English
Original: https://www.rareconnect.org/en/posts/700cffdf-67f1-462b-9332-6f488b8e86bf
Posted By: ritje

Professor Gregor K. Wenning – Berichten Famous MSA Award for Nadia Stefanova

Nadia Stefanova, the Director of the Neurodegeneration Laboratory at the Department of Clinical Neurobiology (Director Gregor K. Wenning), Medical University Innsbruck, was awarded the “JiePie” Schouppe Prize 2018 for her outstanding experimental MSA research in the run-up to World MSA Day on October 3rd. The prestigious award comes back to Innsbruck for the second time after its endowment to Professor Gregor K. Wenning in 2014.
Multiple System Atrophy (MSA) is a rare neurological disease – in Austria it affects around 1,000 patients, and around 40,000 patients across Europe – caused by the destruction of cells in certain regions of the brain. Clinically, MSA patients often develop Parkinson’s syndrome and autonomic failure. Specific for MSA is non-responsiveness to Parkinson’s therapy, which contributes to the rapid progression of the disease. Against this background, the development of efficient therapy plays an urgent role. An essential pathogenic role is played by the neuronal protein alpha-synuclein, which is not produced in glial cells in the healthy brain, although MSA occurs mainly in oligodendroglial cells.

Internationally visible MSA research
Together with Gregor Wenning, designated MSA expert and Director of the Department of Clinical Neurobiology and other scientific staff, Nadia Stefanova is a member of one of the few teams worldwide that has been intensively researching MSA and alpha-synuclein for many years. This team has made numerous innovative contributions to understanding pathomechanisms, developing new treatment options and diagnostic markers of MSA. The fact that the JP “JiePie” Schouppe Award is coming to Innsbruck for the second time speaks highly for the location as a designated Multiple System Atrophy research center.
At a festive fundraising dinner in the presence of Belgian Vice-President Jan Jambon at the International MSA Symposium in Antwerp in September, Nadia Stefanova was awarded the prestigious prize. The prize aims to raise awareness of MSA and promote MSA research, and is particularly supported by Belgian politicians due to a MSA-related death of a parliamentarian.
Crucial to the award ceremony were Stefanova’s outstanding findings based on a transgenic MSA mouse model developed and established by her, which provided a suitable preclinical test bed for the investigation of innovative therapeutic approaches such as gene transfer and stem cell transplantation. The Innsbruck MSA mouse model is the only one in the world that combines genetic and exogenous factors analogous to the human pathogenesis, so that finally clinical studies with the substances rasagiline, minocycline and AZD 3241 could be carried out in MSA patients and the knowledge could be gained that microglial activation is a central pathogenic mechanism in the genesis of MSA. “Currently, preclinical studies are also underway with immunotherapies, for example in the EU project ARTEMIS,” Stefanova, born in Bulgaria, highlights future intervention strategies. (D. Heidegger)

Links
Laboratory for experimental neurodegeneration research
Department of Neurobiology
University Clinic for Neurology

French version

Titre: Prix JiePie célèbre pour MSA Research 2018 pour Nadia Stefanova
Date: 21 novembre 2018 – Rédigé à l’origine en anglais
Original: https://www.rareconnect.org/en/posts/700cffdf-67f1-462b-9332-6f488b8e86bf
Posté par: ritje

Professeur Gregor K. Wenning – Berichten Célèbre MSA Award pour Nadia Stefanova

Nadia Stefanova, directrice du laboratoire de neurodégénérescence du département de neurobiologie clinique (directrice Gregor K. Wenning), université de médecine d’Innsbruck, a reçu le prix JP «JiePie» Schouppe 2018 pour ses recherches expérimentales exceptionnelles sur le MSA dans la perspective du World Journée MSA le 3 octobre. Le prestigieux prix revient à Innsbruck pour la deuxième fois après sa dotation en faveur du professeur Gregor K. Wenning en 2014.
L’atrophie multisystémique (AMS) est une maladie neurologique rare. En Autriche, elle affecte environ 1 000 patients et environ 40 000 patients en Europe. Elle est causée par la destruction de cellules dans certaines régions du cerveau. Cliniquement, les patients atteints de MSA développent souvent le syndrome de Parkinson et une défaillance autonome. La non-réactivité au traitement de Parkinson est spécifique à la MSA, ce qui contribue à la progression rapide de la maladie. Dans ce contexte, le développement d’une thérapie efficace joue un rôle urgent. La protéine neuronale alpha-synucléine, qui n’est pas produite dans les cellules gliales du cerveau en bonne santé, joue un rôle pathogène essentiel, bien que la MSA se produise principalement dans les cellules oligodendrogliales.

Recherche MSA visible à l’échelle internationale
Aux côtés de Gregor Wenning, expert désigné MSA et directeur du département de neurobiologie clinique et d’autres membres du personnel scientifique, Nadia Stefanova est membre de l’une des rares équipes au monde à effectuer des recherches approfondies sur la MSA et l’alpha-synucléine depuis de nombreuses années. Cette équipe a apporté de nombreuses contributions innovantes à la compréhension des mécanismes pathologiques, au développement de nouvelles options de traitement et de marqueurs diagnostiques de la MSA. Le fait que le prix JP “JiePie” Schouppe soit à Innsbruck pour la deuxième fois est très élogieux pour son emplacement en tant que centre de recherche sur l’atrophie multiple de systèmes.
Nadia Stefanova a reçu ce prix prestigieux lors d’un dîner de collecte de fonds en présence de Jan Jambon, vice-président de la Belgique, au symposium international MSA tenu à Anvers en septembre dernier. Ce prix vise à sensibiliser le public à la MSA et à promouvoir la recherche sur la MSA. Il est particulièrement soutenu par les hommes politiques belges en raison du décès d’un parlementaire lié à la MSA.
Les découvertes exceptionnelles de Stefanova, fondées sur un modèle de souris transgénique MSA développé et établi par elle, ont joué un rôle crucial dans la cérémonie de remise des prix. Elles constituaient un banc d’essai préclinique approprié pour la recherche d’approches thérapeutiques innovantes telles que le transfert de gènes et la transplantation de cellules souches. Le modèle de souris MSA d’Innsbruck est le seul au monde à associer des facteurs génétiques et exogènes analogues à la pathogenèse humaine, de sorte que des études cliniques portant sur les substances rasagiline, minocycline et AZD 3241 pourraient enfin être menées chez des patients atteints de MSA et que les connaissances pourraient être améliorées. ont appris que l’activation microgliale est un mécanisme pathogène central dans la genèse de la MSA. “Actuellement, des études précliniques sont également en cours sur les immunothérapies, par exemple dans le projet européen ARTEMIS”, a déclaré Stefanova, né en Bulgarie, qui a présenté les stratégies d’intervention futures. (D. Heidegger)

Liens:
Laboratoire de recherche expérimentale sur la neurodégénérescence
Département de neurobiologie
University Clinic for Neurologie

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